Finally it was time to leave and go to where he was being dropped off for car pooling over to the camp location. His bucket was packed with the few “required” items and he was so excited. He was really excited because this year he got to use the big CamelBak. Of course that excitement soon dissipated just a little bit when he realized how much heavier it was to carry. “That is the difference 1 liter of water makes.” He shrugged it off and smiled. He was using the big CamelBak, he really did not care.
The final step before leaving is the sun screen and bug spray…
She was standing there looking at me. I assume she knew something about something or she would not have been the First Aid person on call. Of course I should not assume anything. She should have been able to at least understand me when I tell her that he has a migraine. When I asked if he was given the Advil when he came in the response was, “Well no, he did not have a headache.” He did not have one at that moment either. I proceeded to tell her that the number one sign of migraines in children is vomiting with or without head pain.
Did you check his temperature? “No, would you like me to?” Yes! A quick check of his temperature will verify that he is in fact not too sick to return to the group, hello?!. I did not say that, but I was certainly thinking it. Of course his temperature was less than 98˚F. His forehead was cool to the touch and he was clammy.
She was still not getting it. How can you have a “migraine” without head pain? Was the whole look I was getting. It was that stupid, I am confused but I am not going to say anything look. I grabbed a hold of the top of his head and I said, “Look. Look at his eyes. This is how I know this is a migraine and there is something going on. Do you see how dilated his pupils are? Do you see how they do not contract?” The look on her face was priceless. It was a cross between shock and and sheer surprise. I do not think she had seen anything like that before. I had not either until it started. I did not know what it was at first. I had to figure out what it went to.
Finally, I got the 2 Advil that I had checked into the nurse with a specific note to treat him for headache. Grrrr! Naturally, the headache pain started about 2 minutes after he took the Advil. If we had not spent 5 minutes discussing how he must be sick because he threw up and how he did not have head pain, we could have spared him those 5 minutes.
Fortunately, he did not get the headache until the very end of the day.
This is what I wrote about it on Facebook:
Migraines suck even worse when you watch your 9 year old son suffer with one. Figuring out the triggers are always loads of fun. Today, the “flashing lights” got the better of him. You never would have guessed that the sun flashing off the pond would set him off, but it set him off. Made him sick enough that he threw up at Cub Scout Day Camp today. I have decided that trying to explain childhood migraines to others is sometimes even less fun than the headache itself.
Since June is Migraine and Headache Awareness Month, children do not always manifest with head pain first when they get a migraine. This is part of the reason it is so hard to diagnose them with migraines in the first place. Their symptoms are often common childhood illnesses. For many children their most common symptom is stomach pain and/or vomiting. The head pain may come as an “after thought” so to speak, if at all. It is important to know that not all migraines manifest with pain for adults either.
For Lance, we are still learning what all of his “pre-pain” symptoms are but I have learned that he suffers from seemingly random vomiting, he will ask “Is it hot in here or is it just me?,” he gets cold and clammy to the touch but his head may be sweaty, and his pupils get ginormous. Unfortunately, Lance has not learned to distinguish all these symptoms in his day to day activities yet so we have to rely on others to recognize that “something is off” with him. With a migraine preventative now, if we get to the migraine fast enough it does respond very quickly to hydration, ice, and over the counter pain medications. That is the good news.
The bad news is that he has to learn to live with it the rest of his life. Those of us that already live with it know that it is not fun and it is disheartening to know what he faces.
It was after talking to him that I learned about what the trigger was. It was not anyone’s fault. It was just something that happened. I was just upset with the nurse because of her lack of sensitivity and understanding. I would not have thought about the ripples on the pond with the sun flashes being a problem. If I had been sitting there with him, I probably would have recognized it and acted and the problem could have been averted. The key is that I was not there. Lance did not recognize it. No one else knew and there was a trigger lurking there.
Since I figured it out from the story he was telling me after we got home and he was talking about his day and I caught him with the camera flash, I put two and two together. I was able to tell the Den Leader to just turn him around and put his back to the water tomorrow. He will be fine. It was not the knives that were scary. He had this “scared” feeling come over him because that was a “pre-pain” symptom he got. It was a feeling of general un-well-ness and he associated that with fear because he did not know what it was. It came on so fast and hit him so hard. It came as fast as the nausea and ultimately the vomiting. It probably was scary to him. He just associated it with the event that happened right then – them pulling out the knives – because that was tangible to him.
The good news is that with a Coke on the way home and the Advil already in his system, he is fine tonight. Even my camera flash incident was only brief incident of pain. Once the eye disturbance of the flash subsided his pain subsided. He lectured me on the use of the flash and we moved on.
Tomorrow we will try again and hopefully he will have a better day.
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